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Living with Epilepsy: A Day in the Life of a Person with Seizures

My epilepsy did not only change my mental state but my physical state. I still can go out and do things high schoolers do, it's just that I have to be much more careful than other people. I can't go above my height (I break that rule a lot), I can't see flashing lights, and a bunch of other things. I don't think of my epilepsy as a bad thing anymore (due to bullying). I try to use it for the better. An example is using my experiences as a help to others who are going through this or using my knowledge to try to tell people more about epilepsy and make it more in lack of better terms “popular”. To bring more attention to it because not a lot of people know about epilepsy.

Bullying and school with epilepsy:

Due to bullying when I first got diagnosed I still get very self-conscious about my epilepsy. I’ve been in positions in which kids would put flashlights in my face to try to “provoke a seizure”. I’ve had kids say I flop like a fish while having one (I’ve never had a seizure during a school day). I’ve been left out because people think I would not be able to go because of my epilepsy. One of my main goals is to promote more research on epilepsy and to bring awareness.

Sports and epilepsy:

I am one not to play sports. I’ve never been a sports player of sports. I'm more of a watcher than a player. Hence is probably why I'm dating a hockey player. But physical activity is a hard subject to talk about because so many things can happen. I know from my experience if I get overheated it can turn into any type of seizure. From what I have to do in gym class if there is ever a time I do not feel safe playing a sport I will refuse to do it and if the teacher makes me do it I walk out. I would rather walk out of a classroom than worry that something could happen.

Jobs and epilepsy:

I never had a very difficult time finding a job, to be honest. But for many others, it could be completely different. I’m grateful a big amount of my seizures happen at night. I work in a childcare center as a part-time Infant Teachers Assistant. I would just recommend at the interview to say you do have epilepsy and let the job decide about what they will do.


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